Caregivers: When Your Loved One Has a Brain Tumor

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Caregiver Stories

Gain insight and support from those who have walked the path of caring for a loved one with a brain tumor.

About Recurrent Glioblastoma and the ReSPECT-GBM Clinical Trial

Recurrent glioblastoma, sometimes referred to as glioblastoma multiforme or simplyGBM, stands as one of the most aggressive brain tumors known to medical science. Itis a malignancy that relentlessly invades the brain, presenting a formidable challengefor …

About Leptomeningeal Metastase and the ReSPECT-LM Clinical Trial

Leptomeningeal Metastases (LM) is sometimes referred to as leptomeningeal cancer,leptomeningeal disease, neoplastic meningitis, or meningeal carcinomatosis. This rarebut serious condition happens when cancer cells spread to the membranes surroundingthe brain and spinal cord.  Leptomeningeal Metastases is …

December 2024 Ambassador Spotlight- Naomi Olivarez

Written by Naomi Olivarez I’ve had the honor of being involved with Head for the Cure for what will be ten years next September of 2025. I first joined in 2015, the year my son passed away from stage 4 glioblastoma multiforme, and I haven’t missed a single event since. To say it was a difficult time is an understatement. All I wanted was to find a place where people could understand my pain and where something good could come from such a devastating experience. Watching my son endure things I’d only ever heard about in commercials was excruciating. Equally …

Episode 18 of the Rare Enough Podcast: Featuring Luke Anderson

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

The Role of OT in the Rehabilitation of Brain Tumor Patients

Occupational therapy (OT) helps brain tumor patients do the tasks they need or want to do to get through the day when faced with physical, cognitive, or emotional changes. OT takes a big-picture view of …

Problem-Solving Strategies for Brain Tumor Patients

In some cases, brain tumors can affect a person’s problem-solving abilities. This can happen due to the tumor itself or as a result of the effects of standard treatments such as chemotherapy or radiation. Rehabilitation …

Seizure Preparedness and Management

Seizures and Brain Tumors Seizures are a common concern for many brain tumor patients due to changes in brain function. Seizures can result from the disruption of normal brain activity caused by brain tumors. Knowing …

What is the Karnofsky Performance Status (KPS) Scale?

The Karnofsky Performance Status (KPS) scale is a tool that helps doctors measure a person’s physical abilities, independence level, and how well a person can manage daily activities when dealing with a chronic illness, particularly …

Planning and Organization Strategies for Brain Tumor Patients

Why Planning and Organization Matter After brain tumor treatment, changes in the brain can affect important thinking skills that help with planning, organizing, and starting tasks. These skills are necessary for managing day-to-day activities like …

Navigating the Role of Caregiving

Caring for someone with a brain tumor is a significant responsibility that requires both the caregiver and the care recipient to navigate numerous changes together. Having the right tools and support is essential for caregivers …

Caregiver Stories

December 2024 Ambassador Spotlight- Naomi Olivarez

Written by Naomi Olivarez I’ve had the honor of being involved with Head for the Cure for what will be ten years next September of 2025. I first joined in 2015, the year my son passed away from stage 4 glioblastoma multiforme, and I haven’t missed a single event since. To say it was a difficult time is an understatement. All I wanted was to find a place where people could understand my pain and where something good could come from such a devastating experience. Watching my son endure things I’d only ever heard about in commercials was excruciating. Equally …

Episode 18 of the Rare Enough Podcast: Featuring Luke Anderson

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Episode 17 of the Rare Enough Podcast: Featuring Brian & Emily Godawski

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

The Emotional Power of Faith in a Brain Tumor Journey

ney: One Caregiver’s Perspective Written by Chris Childress, brain cancer survivor and caregiver to Daughter Allie Montgomery My prayer life has helped me navigate my own brain tumor journey, but it has also helped me …

Episode 16 of the Rare Enough Podcast: Featuring Kelly & Evie Fisher

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Episode 14 of the Rare Enough Podcast: Featuring Michael & Vanessa Hugo

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Episode 13 of the Rare Enough Podcast: Featuring Colin Gerner, CEO and Co-Founder of StacheStrong

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Embracing My New Caregiver Identity

Becoming a caregiver for my husband with brain cancer was a transformative experience that I never imagined I would have to go through. It challenged me emotionally, physically, and mentally, pushing me to discover strengths …