Patients & Survivors

A brain tumor diagnosis in a child is life-altering, bringing challenges that no family expects to face. From navigating treatment options to addressing emotional and financial burdens, families need comprehensive support. That’s where the Children’s …

Written by Liz Piña Liz Piña’s husband Julio was diagnosed with anaplastic ependymoma in 2018 when they were both 34 years old. Julio had just begun a new career after serving eight years and one …

Written by Melissa Lambert It was April 26th 2021, and I was on my way to a physical therapy appointment.  I had been struggling the last few months because I had migraines, bouts of vomiting, …

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Written by Ross Gregory, Head for the Cure Staff Member The Society for Neuro-Oncology (SNO) Annual Conference in Houston this November brought together a vibrant community of researchers, clinicians, innovators, and advocacy groups passionate about …

Recurrent glioblastoma, sometimes referred to as glioblastoma multiforme or simplyGBM, stands as one of the most aggressive brain tumors known to medical science. Itis a malignancy that relentlessly invades the brain, presenting a formidable challengefor …

Leptomeningeal Metastases (LM) is sometimes referred to as leptomeningeal cancer,leptomeningeal disease, neoplastic meningitis, or meningeal carcinomatosis. This rarebut serious condition happens when cancer cells spread to the membranes surroundingthe brain and spinal cord.  Leptomeningeal Metastases is …

Written by Naomi Olivarez I’ve had the honor of being involved with Head for the Cure for what will be ten years next September of 2025. I first joined in 2015, the year my son passed away from stage 4 glioblastoma multiforme, and I haven’t missed a single event since. To say it was a difficult time is an understatement. All I wanted was to find a place where people could understand my pain and where something good could come from such a devastating experience. Watching my son endure things I’d only ever heard about in commercials was excruciating. Equally …