Advocacy, Education, and Connection For the Brain Tumor Community

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

The thought of embracing my new identity as a brain tumor patient was a daunting journey filled with uncertainties and challenges. However, it was essential to remember that my identity is not solely defined by my medical condition. While it undoubtedly plays a significant role in my life, it doesn’t overshadow the other aspects of who I am as a person. Here are some steps that helped me navigate and embrace my new identity:Acknowledge Your Feelings: It’s okay to feel a range of emotions, including fear, anger, sadness, and even relief.

In the journey of facing a medical condition, it’s easy to let the label of “patient” overshadow our sense of self. Whether it’s a chronic illness, a sudden diagnosis, or a long-term treatment plan, the identity of being a patient can consume our thoughts and actions. However, it’s crucial to recognize the importance of prioritizing ourselves as individuals over our identity as patients. Here’s why:Preserving Self-Worth: Being a patient doesn’t define your worth as a person. It’s essential to maintain a healthy sense of self-worth independent of your medical condition. Remembering your talents, strengths, and qualities can help you maintain …

Being diagnosed with a brain tumor is an overwhelming experience that can turn your world upside down. Alongside the physical challenges, the journey often takes a toll on your emotional and psychological well-being, leaving you feeling disconnected from your sense of self. However, amidst the chaos, it’s crucial to remember that you are more than your illness. Regaining a sense of self is a fundamental part of the healing process, and it’s entirely possible with the right approach. Here are some tips to help brain tumor patients reclaim their identity and find inner strength during this challenging time.Acceptance and Self-Compassion:The …

A brain tumor diagnosis brings forth a mass of challenges, not only physical but also emotional and mental. Managing your mental health becomes a crucial aspect of the journey for both patients and survivors. In …

Surviving brain cancer is a triumph, but it often comes with a complex set of emotions, including survivor’s guilt. This guilt arises from the feeling of being fortunate to have survived while others facing similar circumstances did not. Certain thoughts can take over such as, “Why did I survive while others did not?” and “What makes me special?” Coping with survivor’s guilt can be challenging, but it’s essential for long-term mental and emotional well-being. In this article, we’ll delve into the phenomenon of survivor’s guilt in the context of brain cancer survivors and provide tips to help navigate through it.

Stewart’s journey shows how he overcame challenges with determination and positivity. His experience demonstrates the strength of resilience in facing illness and offers hope to others in similar situations. Stewart’s story emphasizes the importance of patient empowerment and serves as a beacon of hope for those navigating difficult times. Check out the complete feature from Forbes here!

Kansas City beneficiary partners, the University of Kansas Cancer Center and Children’s Mercy, collaborated in efforts to treat a pediatric brain tumor patient.

In the age of digital connectivity and social media, the internet has become an invaluable tool for providing support and staying connected, especially for patients and their caregivers.

Written by Anna Blackwell, Ganglioglioma survivor and Ambassador for Childhood Cancer Awareness Month