A brain tumor diagnosis in a child is life-altering, bringing challenges that no family expects to face. From navigating treatment options to addressing emotional and financial burdens, families need comprehensive support. That’s where the Children’s Brain Tumor Foundation (CBTF) steps in. Since 1988, CBTF has been dedicated to improving the quality of life for children with brain tumors and their families by providing essential resources, emotional support, and advocacy.

Comprehensive Support and Resources

CBTF offers a variety of programs to assist families at every stage of their journey. These resources are designed to provide education, guidance, and a strong support network.

1. Emotional and Peer Support

  • Mentor Programs: CBTF connects families with others who have been through similar experiences. Their Peer Mentorship Program links newly diagnosed families with those who have navigated the process, offering invaluable guidance and understanding.
  • Young Adult and Sibling Support Groups: Recognizing that brain tumors impact the entire family, CBTF provides spaces for young survivors and siblings to share their experiences, find encouragement, and build lasting friendships.
  • Bereavement Support: Losing a child to a brain tumor is an unimaginable tragedy. CBTF ensures that grieving families are not alone, offering resources and compassionate support to help them cope.

2. Educational Resources

  • Survivorship Education: CBTF helps families and survivors understand the long-term effects of treatment, including cognitive and physical challenges, offering guidance for educational and professional development.
  • Webinars and Conferences: Through expert-led discussions, CBTF provides up-to-date information on treatments, clinical trials, and survivorship issues, ensuring families have access to the latest medical insights.
  • Resource Library: CBTF maintains an extensive collection of materials on treatment options, school advocacy, and coping strategies for both survivors and caregivers.

3. Financial and Logistical Assistance

  • Emergency Financial Aid: Understanding the financial strain that comes with treatment, CBTF provides assistance to families in need, helping with travel, lodging, and other essential expenses.
  • Navigational Support: The foundation offers one-on-one support to help families manage medical appointments, insurance questions, and school advocacy for children undergoing treatment or in survivorship.

Why the CBTF Matters

The Children’s Brain Tumor Foundation doesn’t just provide resources; it fosters a community of strength, resilience, and hope. By addressing not only the medical needs but also the emotional and social aspects of a diagnosis, CBTF ensures that families are supported every step of the way.

If you or someone you know is facing a pediatric brain tumor diagnosis, visit cbtf.org to explore their comprehensive resources and connect with a network that truly understands.