July 22, 2020
Introducing the Glioblastoma Bill of Rights
Initiated by the nonprofit, OurBrainBank, Brains for the Cure and many other advocacy groups, including Head for the Cure, are honored to present the Glioblastoma Bill of Rights.
It is estimated that 87,000 people will be diagnosed with a brain tumor this year, and 14.6% of those diagnoses will be a glioblastoma. From OurBrainBank “the GBM Bill of Rights was crafted from the results of a 2019 survey taken by 400+ GBM patients and caregivers. It includes the right to: personalized care, genetic testing, a second opinion, experimental trials and treatments, psychological support, money-blind treatment, fast-tracked MRI results, best end-of-life care, and more.”