Advocating for a Patient's Rights

When someone is diagnosed with a brain tumor the amount of information provided can feel overwhelming and they may not know where to begin. Brain tumor advocacy organizations fight for the rights due to a patient and have put together documents to help patients and caregivers fight for the best care.

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The Brain Tumour Patients’ Charter of Rights

The purpose of this charter is to achieve the best possible health and quality of life outcomes for adults and children living with a brain tumour. To represent an aspirational ideal against which quality standards, policies and practices are developed, monitored and delivered.

Download the charter here.

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Glioblastoma Bill of Rights

The Glioblastoma Bill of Rights was crafted from the results of a 2019 survey taken by 400+ GBM patients and caregivers. It includes the right to: personalized care, genetic testing, a second opinion, experimental trials and treatments, psychological support, money-blind treatment, fast-tracked MRI results, best end-of-life care, and more.