Journey Phase Categories: Medical - Diagnosis

Caregiver Questionnaire

JPH Guide

Medical

Medical - Diagnosis

Medical: Information Overload

Important Topics to Discuss After a Brain Tumor Diagnosis

Facing a diagnosis of brain cancer can be an overwhelming and challenging experience, not only for the patient but also for their caregivers. Throughout this journey, effective communication between the patient and caregiver is paramount for understanding treatment options, managing symptoms, and maintaining overall well-being. In this article, we’ll explore some crucial topics that patients should discuss with their caregivers to ensure a smoother and more informed brain cancer journey.Understanding the Diagnosis Clarify the type and stage of brain cancer:

Read More

JPH Guide

M: Deciding on a Medical Team

Medical

Medical - Diagnosis

Medical: Comfortability with Medical Team

Communication With Your Medical Team

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

Read More

Caregiver Questionnaire

JPH Guide

M: Managing Information Overload

Medical

Medical - Diagnosis

Medical: Information Overload

5 Steps For Effectively Managing Information

Explore practical tips and tricks from people who’ve been through it too, to make things easier as you handle and organize your medical information to helps you stay in control and lower stress during the medical journey. Step 1 Choose the method(s) that work for you in recording information. Are you inclined to take notes on paper, on your phone, or on a tablet? Perhaps a combination of both? Your preferred method of recording information will likely influence how you structure the rest of your organizational system.

Read More

Caregiver Questionnaire

JPH Guide

M: Appointment Expectations

Medical

Medical - Diagnosis

Medical: Information Overload

Managing Information Overload

The early phases of brain tumor treatment be overwhelming, not just physically, but also mentally and emotionally. The sheer volume of medical details, treatment options, and emotional support resources can feel like a tidal wave. From medical reports and treatment options, to support groups and lifestyle changes, the amount of information bombarding you can be immense. It’s normal to feel overwhelmed as you try to process it all. Remember, you’re not alone in this, and finding a balance is crucial for maintaining your well-being.

Read More

Caregiver Questionnaire

JPH Guide

M: Symptom Management

Medical

Medical - Diagnosis

Medical: Standard of Care (SOC)

Brain Tumor Symptoms & Tumor Specific Symptoms

Different parts of the brain control different functions, so brain tumor symptoms will vary depending on the tumor’s location. For example, a brain tumor located in the cerebellum at the back of the head may cause trouble with movement, walking, balance, and coordination. If the tumor affects the optic pathway, which is responsible for sight, vision changes may occur.The tumor’s size and how fast it’s growing also affect which symptoms a person will experience.

Read More

Caregiver Questionnaire

Caregiver Stories (Homepage)

Medical

Medical - Diagnosis

Medical: Healthy Coping

Difficult Conversations Prior to Treatment

After a diagnosis of brain cancer, it is likely that surgery or some other treatment will be recommended to remove or shrink the tumor. These treatments can sometimes alter a patient’s mental status and/or ability to communicate. This possibility makes it all the more important for families to consider executing various legal documents to ensure that a patient’s wishes are honored. While it may seem morbid to discuss what treatments or measures should be taken to keep someone alive or comfortable, these documents can help provide guidance and reassurance for …

Read More

Caregiver Questionnaire

Medical

Medical - Diagnosis

News

Limitations of the Standard of Care for Patients with Brain Tumors

Since I started my training, there was the establishment of what’s currently the standard of care. Which is the concurrent use of radiation and temozolomide and adjuvant temozolomide. That, unfortunately, has not changed though, in the last 15 years. So although I got to see the transformation of the field and maybe for the first time, a large number of patients who have five years and beyond survival, we still have not been able to really make that a reality for a majority of patients. So we’ve unfortunately had some limitations in the advancements since that time.

Read More

1 2 3 4