
May 2025 Ambassador Spotlight - Lisa Joerling
Written by Lisa Joerling My brain tumor journey began 11 years ago when I was diagnosed with a ganglioglioma brain tumor at just 19 years old. I was a sophomore at K-State and was home …
May 2, 2025
Written by Lisa Joerling My brain tumor journey began 11 years ago when I was diagnosed with a ganglioglioma brain tumor at just 19 years old. I was a sophomore at K-State and was home …
May 2, 2025
Written by Robert Marx Spending 26 months caring for someone with a terminal illness gives you a brutally clear perspective on what truly matters. I lost my wife, Elli, to glioblastoma—only to realize afterward that …
April 1, 2025
Written by Liz Piña Liz Piña’s husband Julio was diagnosed with anaplastic ependymoma in 2018 when they were both 34 years old. Julio had just begun a new career after serving eight years and one …
March 3, 2025
Written by Melissa Lambert It was April 26th 2021, and I was on my way to a physical therapy appointment. I had been struggling the last few months because I had migraines, bouts of vomiting, …
February 3, 2025
We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …
January 22, 2025
Written by Ross Gregory, Head for the Cure Staff Member The Society for Neuro-Oncology (SNO) Annual Conference in Houston this November brought together a vibrant community of researchers, clinicians, innovators, and advocacy groups passionate about …
December 16, 2024
For episode 08 of the Rare Enough podcast we share a conversation with Shane Brown, where we explore the groundbreaking innovations of GT Medical Technologies and more specifically, the GammaTile.What is the Gamma Tile? GammaTile, created by GT Medical Technologies, is redefining brain tumor treatment. By delivering targeted radiation directly to the tumor bed during surgery, GammaTile minimizes exposure to healthy tissue, offering enhanced outcomes and reduced side effects for patients facing the complexities of brain tumors.
January 10, 2024
The book empathetically captures the emotional nuances of caregiving, validating the challenges and celebrating the strength and resilience of those in this vital role.
January 3, 2024
The book establishes a deep emotional connection, providing valuable insights into navigating healthcare challenges and addressing the emotional aspects of illness.
January 3, 2024
Written by Vaishali Palommella April 2020 – the infamous ‘COVID-19 lockdown’ was in full effect, and we found out we were pregnant with our second child, Sonya, due Dec 27th 2020! Luca just turned 1 …
January 3, 2024