Your Path to Hope Resources

Written by Erin Gaffney I’ve been fortunate to serve as an ambassador for several organizations.  I joined the Executive Leadership Committee for the American Heart Association to raise awareness for heart disease.  I participated in …

About Us Brain tumors present unique challenges, demanding specialized care from diagnosis through treatment. With a shared commitment to addressing these challenges, the Brain Cancer Support and Solutions Alliance leverages the strengths of its member organizations to …

What is the NIH (National Institute of Health)? Established in 1887, the NIH has been at the forefront of medical discovery for over a century. It is the largest public funder of biomedical research in the world, investing billions of dollars annually to support scientists and institutions across the nation and around the globe. Its mission is to seek fundamental knowledge about the nature and behavior of living systems and apply that knowledge to enhance health, lengthen life, and reduce illness and disability.

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

Written by Lisa Joerling – Brains for the Cure Ambassador and Ganglioglioma Survivor Whether you have been just diagnosed, are currently going through treatment, living through watch and wait, or years past treatment, the relationship …

As a patient goes through treatment, they should surround themselves with family, friends, and medical professionals they can trust. It is a team approach. If you think I’m going to see my doctor and we’re …

When someone is diagnosed with a brain tumor the amount of information provided can feel overwhelming and they may not know where to begin. Brain tumor advocacy organizations fight for the rights due to a …

Doctors and survivors from across the country share where they see the importance in choosing the best team for treatment.

Understanding My Medical Team Members of your medical team may include; Neuro-oncolgist: a doctor who treats brain or spine cancer Neurologist: a doctor who deals with disorders of the nervous system Neurosurgeon: a doctor who …

Questions to Ask Your Surgeon These questions will help you decide if surgery is the best treatment option for you, prepare you for surgery, and ensure you are receiving the best possible care.Questions to Ask: …