Your Path to Hope Resources

In some cases, brain tumors can affect a person’s problem-solving abilities. This can happen due to the tumor itself or as a result of the effects of standard treatments such as chemotherapy or radiation. Rehabilitation …

Seizures and Brain Tumors Seizures are a common concern for many brain tumor patients due to changes in brain function. Seizures can result from the disruption of normal brain activity caused by brain tumors. Knowing …

The Karnofsky Performance Status (KPS) scale is a tool that helps doctors measure a person’s physical abilities, independence level, and how well a person can manage daily activities when dealing with a chronic illness, particularly …

Why Planning and Organization Matter After brain tumor treatment, changes in the brain can affect important thinking skills that help with planning, organizing, and starting tasks. These skills are necessary for managing day-to-day activities like …

About Us Brain tumors present unique challenges, demanding specialized care from diagnosis through treatment. With a shared commitment to addressing these challenges, the Brain Cancer Support and Solutions Alliance leverages the strengths of its member organizations to …

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

Follow-up care is a major part of the brain tumor treatment path. The journey for people diagnosed with a brain tumor does not end when active treatment has finished. Your health care team will continue to check that the tumor has not come back, manage any side effects, and monitor your overall health. This is called follow-up care. After treatment, expect routine physical exams, tests, and MRI scans to monitor your recovery. Due to the potential for tumor recurrence, the frequency of follow-ups will be tailored to your specific case.

Kansas City beneficiary partners, the University of Kansas Cancer Center and Children’s Mercy, collaborated in efforts to treat a pediatric brain tumor patient.

Brains for the Cure (BFTC) is an online navigator designed to lend a helping hand throughout one’s brain tumor journey as they advocate for themselves, become educated on the latest research and treatments, and connect with others through Ambassadors, online support groups, and stories.

Written by Brains for the Cure Ambassador and Survivor, Anna I grew up with a relatively normal childhood. I would play basketball, go home and do homework, and eagerly wake up early for morning cartoons. …