Patients & Survivors

Written by Lisa Joerling My brain tumor journey began 11 years ago when I was diagnosed with a ganglioglioma brain tumor at just 19 years old. I was a sophomore at K-State and was home …

Written by Robert Marx Spending 26 months caring for someone with a terminal illness gives you a brutally clear perspective on what truly matters. I lost my wife, Elli, to glioblastoma—only to realize afterward that …

A brain tumor diagnosis in a child is life-altering, bringing challenges that no family expects to face. From navigating treatment options to addressing emotional and financial burdens, families need comprehensive support. That’s where the Children’s …

Written by Liz Piña Liz Piña’s husband Julio was diagnosed with anaplastic ependymoma in 2018 when they were both 34 years old. Julio had just begun a new career after serving eight years and one …

Written by Melissa Lambert It was April 26th 2021, and I was on my way to a physical therapy appointment.  I had been struggling the last few months because I had migraines, bouts of vomiting, …

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Written by Ross Gregory, Head for the Cure Staff Member The Society for Neuro-Oncology (SNO) Annual Conference in Houston this November brought together a vibrant community of researchers, clinicians, innovators, and advocacy groups passionate about …

Recurrent glioblastoma, sometimes referred to as glioblastoma multiforme or simplyGBM, stands as one of the most aggressive brain tumors known to medical science. Itis a malignancy that relentlessly invades the brain, presenting a formidable challengefor …