Caregivers: When Your Loved One Has a Brain Tumor

You Are Not Alone

See stories from people who have been there before. I'm _________, who has a brain tumor.

Who Can I Talk To?

Join upcoming caregiver support groups via video call.

Connect with others in a private social media group.

Meet our Caregiver Ambassadors

Where Do I Get Started?

Medical basics: Understand your loved one's diagnosis.

Find your medical team.

Life with a brain tumor.

How Can I Advocate For My Loved One?

Questions to ask doctors and surgeons.

Find a doctor or a second opinion.

Download our printable resource guide.

Discussing a patient's rights.

Treatments and Trials: What To Know?

Find a doctor or a second opinion.

Find and join a clinical trial.

Questions to ask about treatments.

Where Can I Find Help and Resources?

Find local resources or groups.

Connect with other caregivers.

Connect with a top brain tumor center.

Making Difficult Decisions

Palliative care options.

How to have difficult conversations.

Hospice care options.

Foster your loved one's legacy.

Caring for Yourself

Support your mental & emotional health.

Caregiving after treatment.

Advocate in memory of your loved one.

How to continue after loss.

Recieve Personalized Resources

New Articles

The Importance of Prioritizing Yourself as a Person Over Your Identity as a Patient

In the journey of facing a medical condition, it’s easy to let the label of “patient” overshadow our sense of self. Whether it’s a chronic illness, a sudden diagnosis, or a long-term treatment plan, the identity of being a patient can consume our thoughts and actions. However, it’s crucial to recognize the importance of prioritizing ourselves as individuals over our identity as patients. Here’s why:Preserving Self-Worth: Being a patient doesn’t define your worth as a person. It’s essential to maintain a healthy sense of self-worth independent of your medical condition. Remembering your talents, strengths, and qualities can help you maintain …

Read More »
April 11, 2024 No Comments

Embracing My New Patient Identity

The thought of embracing my new identity as a brain tumor patient was a daunting journey filled with uncertainties and challenges. However, it was essential to remember that my identity is not solely defined by my medical condition. While it undoubtedly plays a significant role in my life, it doesn’t overshadow the other aspects of who I am as a person. Here are some steps that helped me navigate and embrace my new identity:Acknowledge Your Feelings: It’s okay to feel a range of emotions, including fear, anger, sadness, and even relief.

Read More »
April 11, 2024 No Comments

Emotional Outlet: Digital Support

In the digital age, the power of connectivity extends beyond physical boundaries, offering a unique avenue for brain tumor patients and caregivers to find support, share experiences, and build a community. This article explores the benefits of utilizing social media, online forums, and support groups as valuable emotional outlets in the challenging journey of brain tumor diagnosis and caregiving.Social Media:Social media platforms provide an accessible space for individuals to connect, share stories, and engage in conversations. Joining relevant groups and pages dedicated to brain tumor awareness fosters a sense of community among patients and caregivers.

Read More »
April 11, 2024 No Comments