Caregivers: When Your Loved One Has a Brain Tumor

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Caregiver Stories

Gain insight and support from those who have walked the path of caring for a loved one with a brain tumor.

Comprehensive Resources for Pediatric Brain Tumor Patients And Their Families

Pediatric brain tumors are the most common type of solid childhood cancer and only second to leukemia as a cause of pediatric malignancies. The prognosis of pediatric brain tumors depends on the age at presentation, …

Episode 15 of the Rare Enough Podcast: Featuring Dr. Simon Khagi

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Upcoming Optune Gio Open Houses

Meet actual users and caregivers at an Optune GioTM Open House! You’ll learn more about Optune Gio, an FDA-approved treatment for GBM. Optune Gio users and care partners will discuss their experiences living with GBM …

Strides towards a cure: Northwest Biotherapeutics and DCVax® – L

Northwest Biotherapeutics is making significant strides in the fight against Glioblastoma multiforme (GBM), the most lethal form of primary brain cancer, with their lead product, DCVax®-L. GBM is a devastating disease with a grim prognosis: …

New Grief & Loss Support Group

Join us for our new support group, “Legacy of Hope,” dedicated to caregivers who have lost their loved ones to a brain tumor. We’ve created this group to provide a compassionate and understanding space for …

Glioblastoma Awareness Day: Staying informed and Finding Hope

Glioblastoma (GBM) is one of the most complex, deadly, and treatment-resistant cancers. More than 14,490 Americans are expected to receive a GBM diagnosis in 2023.  It can affect anyone—men, women, and children—regardless of age, background, or lifestyle. GBM does not discriminate based on gender, socioeconomic status, region, age, or political affiliation. Every year, on the third Wednesday of July, GBM Awareness Day is observed to acknowledge the profound impact of this devastating disease and to emphasize the national imperative to advance research, raise awareness, and take action toward finding a cure for glioblastoma.Glioblastoma Awareness Day is a vital opportunity to …

Episode 14 of the Rare Enough Podcast: Featuring Michael & Vanessa Hugo

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Imvax Announces Completion of Enrollment in Phase 2b Clinical Trial of IGV-001

Imvax, a national sponsor for Head for the Cure, has made significant strides in cancer research, recently announcing the completion of enrollment in their Phase 2b clinical trial of IGV-001. This milestone, coupled with successful …

First Experience at ASCO

Courtney Watson and I embarked on an unforgettable journey to Chicago for our first ASCO (American Society of Clinical Oncology) conference, representing Head for the Cure. Our excitement and anticipation were palpable as we navigated …

Episode 13 of the Rare Enough Podcast: Featuring Colin Gerner, CEO and Co-Founder of StacheStrong

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Caregiver Stories

Episode 14 of the Rare Enough Podcast: Featuring Michael & Vanessa Hugo

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Episode 13 of the Rare Enough Podcast: Featuring Colin Gerner, CEO and Co-Founder of StacheStrong

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Embracing My New Caregiver Identity

Becoming a caregiver for my husband with brain cancer was a transformative experience that I never imagined I would have to go through. It challenged me emotionally, physically, and mentally, pushing me to discover strengths …

Nurturing Mental Health: Insights and Strategies from Patients and Caregivers

A brain tumor diagnosis brings forth a mass of challenges, not only physical but also emotional and mental. Managing your mental health becomes a crucial aspect of the journey for both patients and survivors. In …

Navigating Caregiving and Regaining a Sense of Self

The journey of caregiving for a loved one battling brain cancer is a deep and frequently life-changing experience. As caregivers, we often find ourselves immersed in the role, dedicating our time, energy, and emotions to support our loved one through this challenging period of life. However, with the demands of caregiving, it’s easy to lose sight of our own identity and needs. In this article, we explore the steps one can take in regaining a sense of self during the tumultuous journey of brain cancer.Acknowledge Your Feelings:Caring for a loved one with brain cancer can elicit a wide range of …

Navigating Relationship Changes as a Caregiver

Caring for a loved one with a brain tumor is a trying experience that extends beyond the patient-caregiver relationship, impacting interactions with spouses, children, friends, and extended family members. Here, we dive into the complex dynamics of caregiving and explore how it effects relationships across different aspects of life. Spousal Relationships Caring for a spouse with a brain tumor often leads to profound changes in the marital relationship:Role Reversal: Caregivers may find themselves assuming roles traditionally held by their spouses, such as managing household finances, making medical decisions, and providing emotional support.

How to Cope with Caregiver Burnout

When a loved one gets a brain tumor diagnosis, someone must step into the crucial role of caregiver. This is a brave step to take, full of its own stresses and challenges, in addition to sharing in much of the stress that the patient is under. And while caregivers are understandably focused on putting the health and well-being of their loved one first, they’re often not prepared for just how hard their own road will be.

The Isolation of Brain Tumor Caregivers: Navigating a Lonely Journey

Caring for a loved one with a brain tumor is a profound and often isolating experience. While caregiving can be rewarding, it also comes with unique challenges that many outsiders may struggle to understand. In this article, we delve into the feelings of isolation and disconnection commonly experienced by brain tumor caregivers and explore strategies for overcoming these barriers to support. The Loneliness of the Journey: Lack of Understanding: Brain tumor caregiving is a complex role that encompasses emotional, physical, and practical challenges.