Caregivers: When Your Loved One Has a Brain Tumor

Explore caregiver resources and stories.

Through a quick questionnaire, Join Your Path to Hope streamlines the brain tumor journey, offering immediate, personalized resources for your medical, emotional, and relational needs. Our goal is to empower patients and caregivers with hope and support across all aspects of the journey.

To get started, we have a few questions about your journey.

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Who Can I Talk To?

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How Can I Advocate For My Loved One?

Treatments and Trials: What To Know?

Where Can I Find Help and Resources?

Making Difficult Decisions

Caring for Yourself

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Join our support group for current caregivers on the second Thursday of each month on Zoom at 6 PM CT!

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Legacy of Hope: Grief & Loss

Join this support group for caregivers who’ve lost a loved one on the third Thursday of each month on Zoom at 6 PM CT!

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Caregiver Stories

Gain insight and support from those who have walked the path of caring for a loved one with a brain tumor.

May 2025 Ambassador Spotlight – Lisa Joerling

Written by Lisa Joerling My brain tumor journey began 11 years ago when I was diagnosed with a ganglioglioma brain tumor at just 19 years old. I was a sophomore at K-State and was home …

April 2025 Ambassador Spotlight – Robert Marx

Written by Robert Marx Spending 26 months caring for someone with a terminal illness gives you a brutally clear perspective on what truly matters. I lost my wife, Elli, to glioblastoma—only to realize afterward that …

Empowering Families: How the Children’s Brain Tumor Foundation Supports Patients and Caregivers

A brain tumor diagnosis in a child is life-altering, bringing challenges that no family expects to face. From navigating treatment options to addressing emotional and financial burdens, families need comprehensive support. That’s where the Children’s …

March 2025 Ambassador Spotlight – Liz Piña

Written by Liz Piña Liz Piña’s husband Julio was diagnosed with anaplastic ependymoma in 2018 when they were both 34 years old. Julio had just begun a new career after serving eight years and one …

February 2025 Ambassador Spotlight – Melissa Lambert

Written by Melissa Lambert It was April 26th 2021, and I was on my way to a physical therapy appointment.  I had been struggling the last few months because I had migraines, bouts of vomiting, …

Mini Episode of the Rare Enough Podcast: Maggie Haynes, Director of Events

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Episode 20 of the Rare Enough Podcast: Doug Burton, MD

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Episode 19 of the Rare Enough Podcast: Matt Anthony

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

2024 SNO Conference Recap

Written by Ross Gregory, Head for the Cure Staff Member The Society for Neuro-Oncology (SNO) Annual Conference in Houston this November brought together a vibrant community of researchers, clinicians, innovators, and advocacy groups passionate about …

About Recurrent Glioblastoma and the ReSPECT-GBM Clinical Trial

Recurrent glioblastoma, sometimes referred to as glioblastoma multiforme or simplyGBM, stands as one of the most aggressive brain tumors known to medical science. Itis a malignancy that relentlessly invades the brain, presenting a formidable challengefor …

Caregiver Stories

Gain insight and support from those who have walked the path of caring for a loved one with a brain tumor.

Empowering Families: How the Children’s Brain Tumor Foundation Supports Patients and Caregivers

A brain tumor diagnosis in a child is life-altering, bringing challenges that no family expects to face. From navigating treatment options to addressing emotional and financial burdens, families need comprehensive support. That’s where the Children’s …

Episode 19 of the Rare Enough Podcast: Matt Anthony

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

December 2024 Ambassador Spotlight- Naomi Olivarez

Written by Naomi Olivarez I’ve had the honor of being involved with Head for the Cure for what will be ten years next September of 2025. I first joined in 2015, the year my son passed away from stage 4 glioblastoma multiforme, and I haven’t missed a single event since. To say it was a difficult time is an understatement. All I wanted was to find a place where people could understand my pain and where something good could come from such a devastating experience. Watching my son endure things I’d only ever heard about in commercials was excruciating. Equally …

Episode 18 of the Rare Enough Podcast: Featuring Luke Anderson

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

The Role of OT in the Rehabilitation of Brain Tumor Patients

Occupational therapy (OT) helps brain tumor patients do the tasks they need or want to do to get through the day when faced with physical, cognitive, or emotional changes. OT takes a big-picture view of …

Episode 17 of the Rare Enough Podcast: Featuring Brian & Emily Godawski

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

The Emotional Power of Faith in a Brain Tumor Journey

ney: One Caregiver’s Perspective Written by Chris Childress, brain cancer survivor and caregiver to Daughter Allie Montgomery My prayer life has helped me navigate my own brain tumor journey, but it has also helped me …

Episode 16 of the Rare Enough Podcast: Featuring Kelly & Evie Fisher

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …