Category: Caregiver Stories (Homepage)

We are thrilled to announce the release of episode 13 of the Rare Enough Podcast, where we have the privilege of hosting Colin Gerner, the CEO and co-founder of StacheStrong. This episode is set to …

Becoming a caregiver for my husband with brain cancer was a transformative experience that I never imagined I would have to go through. It challenged me emotionally, physically, and mentally, pushing me to discover strengths …

A brain tumor diagnosis brings forth a mass of challenges, not only physical but also emotional and mental. Managing your mental health becomes a crucial aspect of the journey for both patients and survivors. In …

The journey of caregiving for a loved one battling brain cancer is a deep and frequently life-changing experience. As caregivers, we often find ourselves immersed in the role, dedicating our time, energy, and emotions to support our loved one through this challenging period of life. However, with the demands of caregiving, it’s easy to lose sight of our own identity and needs. In this article, we explore the steps one can take in regaining a sense of self during the tumultuous journey of brain cancer.Acknowledge Your Feelings:Caring for a loved one with brain cancer can elicit a wide range of …

Caring for a loved one with a brain tumor is a trying experience that extends beyond the patient-caregiver relationship, impacting interactions with spouses, children, friends, and extended family members. Here, we dive into the complex dynamics of caregiving and explore how it effects relationships across different aspects of life. Spousal Relationships Caring for a spouse with a brain tumor often leads to profound changes in the marital relationship:Role Reversal: Caregivers may find themselves assuming roles traditionally held by their spouses, such as managing household finances, making medical decisions, and providing emotional support.

When a loved one gets a brain tumor diagnosis, someone must step into the crucial role of caregiver. This is a brave step to take, full of its own stresses and challenges, in addition to sharing in much of the stress that the patient is under. And while caregivers are understandably focused on putting the health and well-being of their loved one first, they’re often not prepared for just how hard their own road will be.

Caring for a loved one with a brain tumor is a profound and often isolating experience. While caregiving can be rewarding, it also comes with unique challenges that many outsiders may struggle to understand. In this article, we delve into the feelings of isolation and disconnection commonly experienced by brain tumor caregivers and explore strategies for overcoming these barriers to support. The Loneliness of the Journey: Lack of Understanding: Brain tumor caregiving is a complex role that encompasses emotional, physical, and practical challenges.

In the age of digital connectivity and social media, the internet has become an invaluable tool for providing support and staying connected, especially for patients and their caregivers.

Gift from a Child is a national initiative supported by families who have lost children to brain cancer, private foundations, researchers and medical professionals. It currently receives its funding from the Swifty Foundation.

I was able to attend The Society of Neuro-Oncology annual meeting in November 2022 and learned an amazing amount about what the field is focusing on and how it can pave the way for future treatments of this horrible disease.