Journey Phase Categories: Medical - Post Treatment

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

Follow-up care is a major part of the brain tumor treatment path. The journey for people diagnosed with a brain tumor does not end when active treatment has finished. Your health care team will continue to check that the tumor has not come back, manage any side effects, and monitor your overall health. This is called follow-up care. After treatment, expect routine physical exams, tests, and MRI scans to monitor your recovery. Due to the potential for tumor recurrence, the frequency of follow-ups will be tailored to your specific case.

Kansas City beneficiary partners, the University of Kansas Cancer Center and Children’s Mercy, collaborated in efforts to treat a pediatric brain tumor patient.

Brains for the Cure (BFTC) is an online navigator designed to lend a helping hand throughout one’s brain tumor journey as they advocate for themselves, become educated on the latest research and treatments, and connect with others through Ambassadors, online support groups, and stories.

Written by Brains for the Cure Ambassador and Survivor, Anna I grew up with a relatively normal childhood. I would play basketball, go home and do homework, and eagerly wake up early for morning cartoons. …

Caregiving After Treatment More than any other cancer, brain tumors can have lasting and life-altering physical, cognitive, and psychological impacts on a patient’s life. It also has a life-long effect on the caregiver’s life as …

American Association for Cancer Research The American Association for Cancer Research is the world’s oldest and largest professional association related to cancer research. American Association for Cancer Research Read more about the latest in brain …

The next post in Jenguin’s Journey covers how Jenny has had to adjust her diet during treatment.

Brain tumors may strike anyone – including women who want to have families. This can complicate their plans—but there are options.