Behind the Tumor: Ependymoma

An ependymoma is an accumulation of irregular cells, forming a tumor in either your brain or spinal cord. It falls under the category of primary central nervous system tumors, originating directly in your brain or spinal cord rather than migrating from another location. Ependymomas typically exhibit slow growth and seldom extend to other parts of the body.Classified as a type of glioma, ependymomas initiate in glial cells. These cells play a supportive role for neurons in your brain and spinal cord.

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April 10, 2024

The Importance of Having Confidence in Your Medical Team

In the realm of healthcare, confidence in your medical team, from nurses to neurosurgeons, is crucial for successful treatment and recovery. Nurses are your frontline caregivers, providing not just medical care but also comfort and support. Trusting them can ease anxiety and promote better adherence to treatment plans.Moving up, specialists like neurosurgeons handle complex surgeries and conditions. Trusting their expertise directly affects surgical outcomes and recovery. Research shows that patient trust in surgeons correlates with better overall results.But it’s not just about nurses and surgeons. Anesthesiologists, radiologists, and other healthcare professionals all play vital roles in your care. Trust in …

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April 10, 2024

Behind the Tumor: Glioma

Glioma is a collective term referring to a group of tumors originating in the glial cells of the brain, which provide support to the primary brain cell type, neurons.These tumors commonly occur in the cerebral hemispheres, the brain’s largest outer section responsible for vital functions such as movement, speech, cognition, and emotions. Gliomas can also initiate in the brain stem, regulating essential functions like breathing, blood pressure, and heartbeat. Additionally, they may develop in the optic nerves and cerebellum—the part of the brain overseeing balance and non-cognitive functions.

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April 10, 2024

Behind the Tumor: Medulloblastoma

Medulloblastoma is a cancerous brain tumor that starts near the brainstem in the cerebellum. The tumor is fast growing and can spread to other areas of your brain and spinal cord. Medulloblastoma is more common in children than adults. PopulationWhile medulloblastoma is rare, it is the most common pediatric malignant (cancerous) brain tumor. Approximately 20% of childhood brain tumors are medulloblastomas. According to the American Cancer Society, about 500 children are diagnosed with medulloblastoma each year in the United States. There are four known subtypes of childhood medulloblastoma.

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April 10, 2024

Communication With Your Medical Team

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

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April 10, 2024

Behind the Tumor: Glioblastoma (GBM)

Glioblastoma multiforme (GBM) is the most common type of malignant (cancerous) brain tumor in adults. Cancer cells in GBM tumors rapidly multiply. The cancer can spread into other areas of the brain as well. Rarely, the cancer spreads outside the brain to other parts of the body. Glioma tumors like GBM start in glial cells. Glial cells are vital to nerve cell function. GBMs specifically form in glial cells called astrocytes. GBMs are the fastest-growing astrocytoma (tumor that forms in astrocytes). Types Healthcare providers use a grading system from 1 to 4 to indicate brain tumor growth.

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April 9, 2024

What to Expect From Your Follow-up Appointment

Follow-up care is a major part of the brain tumor treatment path. The journey for people diagnosed with a brain tumor does not end when active treatment has finished. Your health care team will continue to check that the tumor has not come back, manage any side effects, and monitor your overall health. This is called follow-up care. After treatment, expect routine physical exams, tests, and MRI scans to monitor your recovery. Due to the potential for tumor recurrence, the frequency of follow-ups will be tailored to your specific case.

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March 28, 2024

5 Steps For Effectively Managing Information

Explore practical tips and tricks from people who’ve been through it too, to make things easier as you handle and organize your medical information to helps you stay in control and lower stress during the medical journey. Step 1 Choose the method(s) that work for you in recording information. Are you inclined to take notes on paper, on your phone, or on a tablet? Perhaps a combination of both? Your preferred method of recording information will likely influence how you structure the rest of your organizational system.

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March 28, 2024

Managing Information Overload

The early phases of brain tumor treatment be overwhelming, not just physically, but also mentally and emotionally. The sheer volume of medical details, treatment options, and emotional support resources can feel like a tidal wave. From medical reports and treatment options, to support groups and lifestyle changes, the amount of information bombarding you can be immense. It’s normal to feel overwhelmed as you try to process it all. Remember, you’re not alone in this, and finding a balance is crucial for maintaining your well-being.

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March 21, 2024

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