Journey Phase Categories: Medical - Treatment

Caregiver Questionnaire

JPH Guide

M: Brain Tumor 101

Medical

Medical - Exploring Options

Medical: Alternate Treatments (Outside SOC)

Understanding Proton Therapy

In the realm of oncology, the pursuit of more precise and effective treatments is unceasing. Among the innovative modalities that have emerged, proton therapy stands out as a promising advancement, particularly in the treatment of brain cancer. Distinguished by its ability to deliver targeted radiation while minimizing damage to surrounding healthy tissue, proton therapy offers a distinct advantage over conventional radiation therapy methods.Understanding Proton Therapy: Proton therapy operates on the principle of using proton beams to irradiate cancerous cells. Unlike conventional radiation, which employs photons, proton therapy harnesses charged particles, specifically protons, to penetrate the tumor with precision.

Read More

Caregiver Questionnaire

M: Clinical trials 101

Medical

Medical - Exploring Options

Medical: Finding your Medical Team

News

A Comprehensive Guide to the National Institute of Health

What is the NIH (National Institute of Health)? Established in 1887, the NIH has been at the forefront of medical discovery for over a century. It is the largest public funder of biomedical research in the world, investing billions of dollars annually to support scientists and institutions across the nation and around the globe. Its mission is to seek fundamental knowledge about the nature and behavior of living systems and apply that knowledge to enhance health, lengthen life, and reduce illness and disability.

Read More

JPH Guide

M: Deciding on a Medical Team

Medical

Medical - Diagnosis

Medical: Comfortability with Medical Team

Communication With Your Medical Team

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

Read More

Caregiver Questionnaire

JPH Guide

M: Glioblastoma

Medical

Medical - Treatment

Medical: Information Overload

Learn More About Novocure

Novocure was founded to provide patients with a new cancer treatment based on using alternating electric fields, when applied at specific frequencies, can disrupt cancer cell division and cause cancer cell death. This innovative treatment, Tumor Treating Fields, is a completely different approach to cancer therapy. What are TTFields?TTFields are electric fields that exert physical forces to kill cancer cells via a variety of mechanisms.Electric fields have different effects on the human body depending on their frequency, leading to diverse applications in healthcare such as microwave ablation, deep brain stimulation, and pacemakers.

Read More

brain cancer

Caregiver Questionnaire

Caregiver Stories (Homepage)

M: Glioblastoma

Medical

Medical - Treatment

The Importance of Shared Decision-Making for Patients with Glioblastoma

A brain tumor patient will encounter numerous specialists and need to make a multitude of decisions throughout their journey. With these factors and more, navigating cancer care can be overwhelming.  For patients with glioblastoma (GBM), management is even more challenging due to their poor prognosis, feelings of isolation, need for treatment, and cognitive decline associated with this rare and progressive disorder. For these reasons, shared decision-making (SDM) must be integrated into standard practice so that patients’ expectations and goals are considered when discussing and weighing the risks and benefits of treatments.

Read More

Caregiver Questionnaire

Medical

Medical - Diagnosis

News

Limitations of the Standard of Care for Patients with Brain Tumors

Since I started my training, there was the establishment of what’s currently the standard of care. Which is the concurrent use of radiation and temozolomide and adjuvant temozolomide. That, unfortunately, has not changed though, in the last 15 years. So although I got to see the transformation of the field and maybe for the first time, a large number of patients who have five years and beyond survival, we still have not been able to really make that a reality for a majority of patients. So we’ve unfortunately had some limitations in the advancements since that time.

Read More

1 2