Communication With Your Medical Team

Receiving a diagnosis of a brain tumor can be overwhelming and daunting. However, effective communication with your medical team can play a crucial role in understanding your condition, exploring treatment options, and ensuring the best possible care. Here’s a beginner’s guide on how to communicate effectively with your medical team after a brain tumor diagnosis:Establish Open Communication Channels: From the very beginning, establish open and honest communication with your medical team. Let them know your concerns, questions, and preferences. Creating a comfortable environment for communication can help alleviate anxiety and foster trust.

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April 10, 2024

5 Steps For Effectively Managing Information

Explore practical tips and tricks from people who’ve been through it too, to make things easier as you handle and organize your medical information to helps you stay in control and lower stress during the medical journey. Step 1 Choose the method(s) that work for you in recording information. Are you inclined to take notes on paper, on your phone, or on a tablet? Perhaps a combination of both? Your preferred method of recording information will likely influence how you structure the rest of your organizational system.

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March 28, 2024

Managing Information Overload

The early phases of brain tumor treatment be overwhelming, not just physically, but also mentally and emotionally. The sheer volume of medical details, treatment options, and emotional support resources can feel like a tidal wave. From medical reports and treatment options, to support groups and lifestyle changes, the amount of information bombarding you can be immense. It’s normal to feel overwhelmed as you try to process it all. Remember, you’re not alone in this, and finding a balance is crucial for maintaining your well-being.

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March 21, 2024

Brain Tumor Symptoms & Tumor Specific Symptoms

Different parts of the brain control different functions, so brain tumor symptoms will vary depending on the tumor’s location. For example, a brain tumor located in the cerebellum at the back of the head may cause trouble with movement, walking, balance, and coordination. If the tumor affects the optic pathway, which is responsible for sight, vision changes may occur.The tumor’s size and how fast it’s growing also affect which symptoms a person will experience.

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March 15, 2024

Difficult Conversations Prior to Treatment

After a diagnosis of brain cancer, it is likely that surgery or some other treatment will be recommended to remove or shrink the tumor. These treatments can sometimes alter a patient’s mental status and/or ability to communicate. This possibility makes it all the more important for families to consider executing various legal documents to ensure that a patient’s wishes are honored. While it may seem morbid to discuss what treatments or measures should be taken to keep someone alive or comfortable, these documents can help provide guidance and reassurance for …

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October 1, 2021

Limitations of the Standard of Care for Patients with Brain Tumors

Since I started my training, there was the establishment of what’s currently the standard of care. Which is the concurrent use of radiation and temozolomide and adjuvant temozolomide. That, unfortunately, has not changed though, in the last 15 years. So although I got to see the transformation of the field and maybe for the first time, a large number of patients who have five years and beyond survival, we still have not been able to really make that a reality for a majority of patients. So we’ve unfortunately had some limitations in the advancements since that time.

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September 10, 2021

Your Medical Decisions

Information on treatment options and guidance on making decisions. Your medical team will work with you to create a treatment plan that’s right for you. Brain tumor treatment depends on many factors including: the results of diagnostic tests or biopsy; the size, location, and growth pattern of the tumor; medical condition, age, and health history of the patient; and the patient’s and family’s wishes. As you make your plan, it is important for you to understand all options and possible side effects so you can make the best decision for you or your loved one. A second opinion is sometimes …

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April 8, 2021

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