Your Path to Hope Resources

Stewart’s journey shows how he overcame challenges with determination and positivity. His experience demonstrates the strength of resilience in facing illness and offers hope to others in similar situations. Stewart’s story emphasizes the importance of patient empowerment and serves as a beacon of hope for those navigating difficult times. Check out the complete feature from Forbes here!

Kansas City beneficiary partners, the University of Kansas Cancer Center and Children’s Mercy, collaborated in efforts to treat a pediatric brain tumor patient.

In the age of digital connectivity and social media, the internet has become an invaluable tool for providing support and staying connected, especially for patients and their caregivers.

Written by Anna Blackwell, Ganglioglioma survivor and Ambassador for Childhood Cancer Awareness Month

DJ utilized the innovative Tumor-Treating Fields technology by wearing the Optune device for 2 years. Last year, DJ joined the Head for the Cure staff as its Community Outreach Coordinator.

Brain tumor survivorship is weird. Depending on a tumor’s location, your deficits vary. In my case, mine are mostly invisible to a casual observer.

When hearing the words, ‘You have a brain tumor’, your mind begins to wander in multiple places; How long do I have? What does this mean? Is it even true? Are you sure? Could it be anything else?

Lynn was living a fast-paced life before she was diagnosed with glioblastoma (GBM). Since her diagnosis, she’s shifted her perspective and found renewed peace and positivity through her unshakeable bonds with friends and family. Making Time for Too Much I used to be a hardworking, never tired, work-till-I-dropped kind of person. Ever heard of that pink bunny character, the one who sells batteries? Well, let’s just say, my energy could’ve put that guy to shame.  I used to leave for work at 5:30 a.m. and return home around 7:15 p.m. On Monday nights, I would dance …

A brain tumor patient will encounter numerous specialists and need to make a multitude of decisions throughout their journey. With these factors and more, navigating cancer care can be overwhelming.  For patients with glioblastoma (GBM), management is even more challenging due to their poor prognosis, feelings of isolation, need for treatment, and cognitive decline associated with this rare and progressive disorder. For these reasons, shared decision-making (SDM) must be integrated into standard practice so that patients’ expectations and goals are considered when discussing and weighing the risks and benefits of treatments.

In the 7 years since I’ve been diagnosed with a large and rare brain tumor called a ganglioglioma, I have become much more comfortable sharing my story with others. I was 19 years old and a sophomore in college when I was diagnosed after my right side went numb and I went to the ER. It was a shock and an even bigger shock when the doctors told me it had been most likely growing slowly for more than 10 years. After I had an awake craniotomy …