Your Path to Hope Resources

Recurrent glioblastoma, sometimes referred to as glioblastoma multiforme or simplyGBM, stands as one of the most aggressive brain tumors known to medical science. Itis a malignancy that relentlessly invades the brain, presenting a formidable challengefor …

Leptomeningeal Metastases (LM) is sometimes referred to as leptomeningeal cancer,leptomeningeal disease, neoplastic meningitis, or meningeal carcinomatosis. This rarebut serious condition happens when cancer cells spread to the membranes surroundingthe brain and spinal cord.  Leptomeningeal Metastases is …

Brain cancer is a devastating diagnosis that profoundly affects patients and their families. The treatment of brain cancer typically involves a combination of surgery, chemotherapy, and radiation therapy. While these treatments are crucial for combating cancer, they often come with a host of physical and emotional side effects. Myofascial release therapy is emerging as a complementary approach that can provide significant benefits to brain cancer patients, helping them manage symptoms, improve their quality of life, and support their overall well-being.

DJ utilized the innovative Tumor-Treating Fields technology by wearing the Optune device for 2 years. Last year, DJ joined the Head for the Cure staff as its Community Outreach Coordinator.

Brain tumor survivorship is weird. Depending on a tumor’s location, your deficits vary. In my case, mine are mostly invisible to a casual observer.

A brain tumor diagnosis can be overwhelming, but fortunately, various proven FDA-cleared and FDA-approved treatment options are available.

When hearing the words, ‘You have a brain tumor’, your mind begins to wander in multiple places; How long do I have? What does this mean? Is it even true? Are you sure? Could it be anything else?

A brain tumor patient will encounter numerous specialists and need to make a multitude of decisions throughout their journey. With these factors and more, navigating cancer care can be overwhelming.  For patients with glioblastoma (GBM), management is even more challenging due to their poor prognosis, feelings of isolation, need for treatment, and cognitive decline associated with this rare and progressive disorder. For these reasons, shared decision-making (SDM) must be integrated into standard practice so that patients’ expectations and goals are considered when discussing and weighing the risks and benefits of treatments.

In the 7 years since I’ve been diagnosed with a large and rare brain tumor called a ganglioglioma, I have become much more comfortable sharing my story with others. I was 19 years old and a sophomore in college when I was diagnosed after my right side went numb and I went to the ER. It was a shock and an even bigger shock when the doctors told me it had been most likely growing slowly for more than 10 years. After I had an awake craniotomy …

As I write this, it marks the week, three years ago, that so drastically changed my life. I was 32 years old when I was told that the headaches I had been suffering from for several months were actually being caused by a lesion on my brain and that I would need brain surgery right away to remove the tumor sitting above my right frontal lobe.